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Posts Tagged ‘hysterectomy’

Inside Job

Ten days after the surgery, six days after returning home from the hospital, and one day after the zipper of staples spanning my abdomen from the pelvis to above and around the belly button is removed, the incision bursts open.

Rolling off my bed, one hand protecting my tender, zipper-free abdomen, I notice something not-quite-blood seeping through today’s “Life is Good” tee shirt.  Lifting the shirt reveals a watery, pinkish-orange substance gushing from my now open scar.  The fluid looks familiar, but I can’t place it.

“RAMONA!  RAMONA! PLEASE COME UPSTAIRS NOW!”

Ramona is on the run.  A hard clatter in the kitchen informs me that our dinner has been dropped on the counter.  I hope she was careful.  Our friend Layne left us wild rice salmon cakes with a wasabi sauce.  I have been obsessing about them all afternoon.

Ramona is up the stairs and by my side in seconds. “What!? What!?”

“Look!” I point to the leaking incision.

“Oh my.  What the hell is that?”

“I don’t know. Blood?  It doesn’t look like blood.” Ramona nods in agreement. “This shouldn’t be happening, right?  Did they tell us this would happen?”  I am seeking reassurance.

“No.  This should not be happening and no, they did not mention this.”

A familiar loud knocking signals the unexpected arrival of our immediate next door neighbor, Skeek.

“COME IN!” We both call.

“HelLO NEIGHBORS!” Her standard greeting.

“SKEEK!  SKEEK!” We yell. “COME UPSTAIRS!”

I show Skeek my belly while Ramona gets a towel to clean me up and staunch the fluid.

“Oh my.  What is that?  It looks like tomato soup.”

That’s what it looks like!” I’m calming down.  I don’t seem to be dying or bleeding out.  The fluid has slowed.

“Have you called the doctor yet?”

“Not yet.  You came just as we noticed it.”

Ramona calls the doctor, but it’s after office hours on a Friday night and we have to wait for the on-call physician to call back.  Skeek goes next door to retrieve our neighbor on the other side of our house.  Mary’s a nurse.  She focuses on brain injury, but we believe she will know enough about blood and guts to be helpful.

Mary arrives, examines, and pronounces, “It’s serosanguineous fluid. Not fatal, no worries.  But you will probably have to go to the emergency room.”

I guessed as much, but I am still deflated.  The on-call physician tells Ramona the same thing. The clock says 6:00 pm.  I consider the length of time we are about to spend in the emergency room.  Decide it’s dinner time.

“Ramona, let’s have dinner. You guys want to join us?”

Skeek and Mary decline our invitation, probably dissuaded by the idea of eating next to an oozing wound, although Skeek does eye the salmon cakes with undisguised envy.

Ramona warms our dinner in the microwave and we eat standing up in the kitchen, a towel between my abdominal wrap and the now wide open incision. The wild rice salmon cakes with wasabi sauce are as yummy as I thought they would be.

In the emergency room, we are not an emergency.  It’s still early on a Friday night, but it’s still Friday night.  I’m glad we ate.  How do you make a wasabi sauce, I wonder, as the emergency room fills up around us with a few drunks and a mix of families with children in varying degrees of distress.  “I bet no one here but us,” I comment to Ramona, “has ever had wild rice salmon cakes with wasabi sauce. We are so lucky.”  She pats my hand.

When the doctor examines me (after I am probed, questioned and pondered over by several nurses and one earnest resident, all of whom are mildly amused by my tomato soup description and a few who ask for the wild rice salmon cake recipe), I learn they can’t “just sew me back up” as I had requested.  Had the incision held, the doctor explains, it would have all healed together but now the healing will have to go layer by layer, from the bottom up.  I don’t ask what layer is what layer, like I am thinking, because the concept is grossing me out.  She tells me, “Basically, you will have to heal from the inside out.”

Healing from the inside out will require twice daily cleaning, which necessitates the twice daily scheduled appearance of a visiting nurse in my home.  The  hospital arranges for visits to begin the next day.  I am also informed that due to the upcoming chemotherapy regimen, I should expect the healing from the inside out to take longer.  Longer than what, I ask.  Longer than it should, I am told.  But don’t worry, it will heal.  Just keep it clean.

After a month of visits by nurses, Ramona takes over the cleaning routine. In the morning and in the evening, I gather the cleaning kit, lie on the couch and remove the bandages. Ramona leans over my belly with a focused frown, saline solution and sterile gauze in hand.  She inspects, cleans, re-packs and re-bandages.  An iron intimacy is forged.  We rarely talk during the cleaning.  Occasionally, I ask, “What does it look like?”  “Pink. Better,” she always responds.

Except “better” is deceiving.  Just when we think the incision has healed, binding my abdomen with a tenuous red line, another small rupture reveals the unhealed layers beneath the skin.

Tiny fragments of clear fishing line, with just a hint of tomato soup, begin emerging from the holes.  I call my doctor.  I get his nursing assistant.

“There is fishing line coming out of my belly. I’m pretty sure it wasn’t there before the surgery.”

“No worries. Those are sutures, dissolving.”

Or not completely dissolving, as it turns out, and the remnants are working their way up and out from some unnamed layer I hadn’t known had been sewn.

Ramona doubts herself.  She has been vigilant, despite conflicting directions.  One camp (the doctor) wants the wound packed tight with gauze.  The other camp (every visiting nurse) is firm in the loose pack methodology.  How can it heal from the inside out if there is no space for the healing? Ramona yields to the nurses, says she can see the difference in healing and, besides, nurses are the ones who tend wounds everyday.

I am doubting myself, too. I am careful with showers, bathing. What are we doing wrong?  Why is my body rejecting the suture threads?  Once a week a visiting nurse checks the wound, inspects Ramona’s work.  Each week she assures us we are doing things right. This happens with other patients.  She repeats that chemo interferes with healing.  She repeats that we need to be patient, not to worry.  Continue the twice daily cleaning.

Nine months of striving not to worry will pass before the inside layers fill in and my abdominal wound closes for good.  In the end, what remains is a thick, red, eight-inch scar stretching up from my pelvis, curving around the place where there used to one belly button but now there are three.  Sometimes I can’t remember which is the original.

© 2010 Cathy Kidman


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Pee in a Cup

When we are called in to prep for the surgery, I am almost relieved.  Finally we will get to the reason I am here.

In the curtained prep area, I get naked into a backless blue  hospital gown and sit on the creaky rolling medical bed, the bed that will deliver me into surgery.  My partner Ramona sits on the hard plastic chair next to me.  A nurse in her mid-fifties enters, checks my pulse, blood pressure, temperature.  Tells me what to expect before and after the surgery.

Asks me to pee in a cup.

“What’s this for?” All the pre-surgery procedures were completed.

“Pregnancy test,” she replies, proffering the cup.

I look at Ramona, who shrugs, then back at the nurse.

“I’m not pregnant.  It’s statistically impossible.”

“You still need to have the test.”

“I don’t want to.”  A slow simmer seeps through each clipped word.  Something intimate is being broached here, this nurse is going someplace she doesn’t belong.  I deflect with a rational reason. “This is an unnecessary test. I don’t want to pay for it and I don’t want my insurance to pay for it.”

“You need to take the test,” she insists, the the skyrocketing costs of healthcare not her concern. “What if you get into surgery and the surgeon finds you are pregnant? This is to protect everyone.”

Ah.  I note the gold cross hanging around her neck, make assumptions.

I am off the table now, the cup and the cross between us.  She is my height.  I can take her, I think. “Look.  I’m not pregnant.  I appreciate your concern.  And even if I am pregnant, which I am not, I give my permission to take everything out.  Hypothetical fetus and all. Consider this informed consent.”  I think I’ve covered it.

The nurse eyes me.  She is resolute. She can take me, too, I can see it in her eyes.  We are facing off for the next round.  I am not having a baby, will never be able to have a baby, the end result of the surgery meant to save my life.  This test is one more cutting reminder.  She will not win.

“Cath, just go pee in the cup,” Ramona’s gentle voice from the corner chair softens the hard knot in my chest, interrupts the standoff. “You don’t need the aggravation today.”

The nurse glances at Ramona, relaxes her stance.  Defeated, I grab the cup out of her hand, grasping the back of my hospital johnny with the other hand, and stomp barefoot into the bathroom. Shut the door hard. When I return, I pass the nurse my unpregnant urine sample.  She leaves and Ramona stands before me, arms open.  I fold into her.  Burst into tears.  “It’s okay, hunny bunny, it’s okay,” she murmurs.

© 2010 Cathy Kidman


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Question

The surgeon visits my partner and me the morning after the surgery.

“How you doin’?”

“I just got spayed,” I reply through a morphine haze.

He thinks it’s the drugs talking.  I squeeze Ramona’s hand.  I feel the finality of the missing uterus, fallopian tubes, cervix, ovaries, eggs.  All the female parts we learn about in middle school, all the parts that make me a woman, were lifted out of my abdomen by his big surgeon hands, dropped in a stainless steel tray, biopsied, and discarded at the end of the day as hazardous waste.  I look down at my bandaged abdomen. What fills in the space when all that is gone?

It was not an illness I asked for. I had asked for an answer.  “Should I have a child?”

The response: ovarian cancer.  A decisive answer to a question that dragged through my thirties with the blade of a serrated knife, leaving jagged bits of regret.  At thirty-nine, I will be forty-five before the magic five year mark passes.  Before I can commit to any child, biological or adopted.

Baby showers and toddler birthday parties will be off limits. Celebrations of a friend’s pregnancy or watching the little arms of an eighteen month old encircling her mother’s neck become scenes beyond my heart.

In the first few years of our relationship, Ramona and I floated the concept of children between us like a lackluster balloon, half-filled with our own hesitant breath.  Ramona didn’t want kids.  She left home at fourteen, the last of six invisible children.  Raising herself was enough parenting.

Ramona and I often said that if someone dropped a baby off on our doorstep, we’d keep it.  Couldn’t miss that sign.  Children seemed like something that would happen, although we never examined how two women would make it “just happen” without planning.  It isn’t like we could get sloppy with the birth control and say “must have been meant to be,” which is how my laid-back friend Andrea decided it was time.

“Do you think it’s right?” asked my mentor and near-mother, the one who parents better than anyone I know, “If you have children, won’t they experience a lot of discrimination?”

“Dana,” I deflected, “aren’t you Jewish? What if all Jews thought like that?”  I didn’t tell her that Ramona and I had privately asked ourselves the same question.

Ramona’s reluctance, not planning, discrimination – all convenient excuses. I didn’t ask God the real question.  Could I have a child I wouldn’t break? Could I raise children and not pass on my own self hatred?  I imagined watching my daughter, examining her weight, praying for an athletic trim body to emerge out of her baby fat.  Or my son who doesn’t read and tries his first drug in fifth grade.  I imagined trying to love them anyway.

For this, ovarian cancer bore no answers.

© 2010 Cathy Kidman

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